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Welcome to the ChILDREN Website!
The Childhood Liver Disease Research and Education Network has recently been funded and combines the Biliary Atresia Research Consortium (BARC) and the Cholestatic Liver Disease Consortium (CLiC), as well as new studies on cystic fibrosis liver disease. This consolidation seeks to facilitate our ability to discover new diagnostics, etiologic, and treatment options for children with liver disease, and those who undergo liver transplantation, and to train the next generation of investigators in rare pediatric liver diseases. These diseases are:
Alpha-1-antitrypsin (a-1AT) deficiency
Alagille syndrome (AGS) Biliary Atresia Progressive familial intrahepatic cholestasis (PFIC) Bile acid synthesis and metabolism defects Mitochondrial hepatopathies Cystic Fibrosis Liver Disease
The purpose of this consortium is to provide a way for patients to join with doctors and researchers by participating in research studies. The greater the collaboration between doctors and patients and their families, the more we can learn about these diseases. This important first step is necessary if we are to find new and better treatments. ChiLDREN can help you: Obtain helpful information about these diseases Stay up to date with new developments Become aware of clinical research and clinical trial opportunities Connect with patient support groups
Please click on the following links to gain more information about these efforts, or contact Ms. Joan Hines at the ChiLDREN Administrative Core.
Biliary Atresia Research Consortium: Click Here Cholestatic Liver Disease Consortium: Click Here Cystic Fibrosis Liver Disease: Click Here ChiLDREN Administrative Core
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| Comments/Requests to: borc-admin@umich.edu |
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