PARTICIPATING CENTERS


Click on a marker in the map, or on one of the names below for more information.

Children's Healthcare of Atlanta

ChiLDReN:

Saul Karpen MD, PhD
Clinical Site Principal Investigator
Children's Healthcare of Atlanta
1760 Haygood Dr
HSRB E204
Atlanta, GA 30322
Email: skarpen@emory.edu

Rita Tory
Clinical Research Coordinator
Children's Healthcare of Atlanta
Department of Clinical Research
1405 Clifton Rd NE
Atlanta, GA 30322
Phone: 404-785-1467
Fax: 404-785-1197
Email: rita.tory@choa.org
Cystic Fibrosis Liver Disease:

A. Jay Freeman, MD, MSc
Clinical Site Principal Investigator
Children’s Healthcare of Atlanta/Emory University
1405 Clifton Rd NE
Atlanta, GA 30322
Phone: 404-785-1832
Fax: 404-785-9183
Email: afreem6@emory.edu

Linton Cuff
Study Coordinator
2015 Uppergate Dr. NE
Atlanta, GA 30322
Phone: 404-712-2493
Fax: 404-712-0920
Email: linton.cuff@emory.edu

Eric Hunter
Clinical Research Coordinator
Emory University/Emory Children’s Center
2015 Uppergate Drive, 3rd Floor
Phone: 404-727-7398
Fax: 404-712-0920
Email: eahunte@emory.edu

Ann & Robert H. Lurie Children’s Hospital of Chicago

ChiLDReN:

Estella Alonso MD
Clinical Site Principal Investigator
Ann & Robert H. Lurie Children's Hospital of Chicago
Division of Pediatric Gastroenterology/Hepatology & Nutrition
225 East Chicago Ave #57
Chicago, IL 60611
Phone: 312-227-4615
Fax: 312-227-9645
Email: e-alonso@northwestern.edu

Sue Kelly RN, BSN
Clinical Research Coordinator
Ann & Robert H. Lurie Children's Hospital of Chicago
Division of Pediatric Gastroenterology/Hepatology & Nutrition
225 East Chicago Ave #57
Chicago, IL 60611
Phone: 312-227-3523
Fax: 312-227-9645
Email: skelly@luriechildrens.org

Mary Riordan, CCRP
Clinical Research Coordinator
Ann & Robert H. Lurie Children's Hospital of Chicago
Division of Pediatric Gastroenterology/Hepatology & Nutrition
225 East Chicago Ave #65
Chicago, IL 60611
Phone: 312-227-4558
Fax: 312-227-9645
Email: mriordan@luriechildrens.org

Cystic Fibrosis Liver Disease:

Estella Alonso MD
Clinical Site Principal Investigator
Ann & Robert H. Lurie Children's Hospital of Chicago
Division of Pediatric Gastroenterology/Hepatology & Nutrition
225 East Chicago Ave #57
Chicago, IL 60611
Phone: 312-227-4615
Fax: 312-227-9645
Email: e-alonso@northwestern.edu

Mary Riordan, CCRP
Clinical Research Coordinator
Ann & Robert H. Lurie Children's Hospital of Chicago
Division of Pediatric Gastroenterology/Hepatology & Nutrition
225 East Chicago Ave #65
Chicago, IL 60611
Phone: 312-227-4558
Fax: 312-227-9645
Email: mriordan@luriechildrens.org

Cincinnati Children's Hospital Medical Center

ChiLDReN:

Jorge Bezerra, MD
Clinical Site Principal Investigator
Cincinnati Children's Hospital Medical Center
Division of Pediatric Gastroenterology, Hepatology & Nutrition
3333 Burnet Ave, MLC 2010
Cincinnati, OH 45229
Phone: 513-636-4928
Fax: 513-636-5581
Email: jorge.bezerra@cchmc.org

Julie Denlinger, RN, BSN
Clinical Research Coordinator
Cincinnati Children's Hospital Medical Center
Division of Pediatric Gastroenterology, Hepatology & Nutrition
3333 Burnet Ave, MLC 2010
Cincinnati, OH 45229
Phone: 513-636-7818
Fax: 513-636-4322
Email: julie.denlinger@cchmc.org

Kelly Gindling RN, BSN
Clinical Research Coordinator
Cincinnati Children's Hospital Medical Center
Division of Pediatric Gastroenterology, Hepatology & Nutrition
3333 Burnet Ave, MLC 2010
Cincinnati, OH 45229
Phone: 513-803-7482
Fax: 513-636-4322
Email: kelly.gindling@cchmc.org

Cystic Fibrosis Liver Disease:

Joseph Palermo MD
Clinical Site Principal Investigator
Cincinnati Children’s Hospital Medical Center
Division of Pediatric Gastroenterology, Hepatology & Nutrition
3333 Burnet Ave, MLC 2010
Cincinnati, OH 45229
Phone: 513-803-3332
Fax: 513-636-7805
Email: joseph.palermo@cchmc.org

Julie Denlinger
Clinical Research Coordinator
Cincinnati Children's Hospital Medical Center
Division of Pediatric Gastroenterology, Hepatology & Nutrition
3333 Burnet Ave, MLC 2010
Cincinnati, OH 45229
Phone: 513-636-7818
Fax: 513-636-4322
Email: julie.denlinger@cchmc.org

Kelly Gindling RN, BSN
Clinical Research Coordinator
Cincinnati Children's Hospital Medical Center
Division of Pediatric Gastroenterology, Hepatology & Nutrition
3333 Burnet Ave, MLC 2010
Cincinnati, OH 45229
Phone: 513-803-7482
Fax: 513-636-4322
Email: kelly.gindling@cchmc.org

Children's Hospital Colorado

ChiLDReN:

Ron Sokol, MD
Network Chair, Clinical Site Principal Investigator
Children's Hospital Colorado
13123 East 16th Ave, Box B290
Aurora, CO 80045
Phone: (720) 777-6669
Fax: (720) 777-7277
Email: ronald.sokol@childrenscolorado.org

Darci Anderson
Clinical Research Coordinator
Children's Hospital Colorado
13123 East 16th Ave, B198
Aurora, Colorado 80045
Phone: 720-777-9911
Fax: 720-777-7351
Email: darci.anderson@childrenscolorado.org

Michelle Hite
Clinical Research Coordinator
Children's Hospital Colorado
13123 East 16th Ave, B198
Aurora, Colorado 80045
Phone: 720-777-4690
Fax: 720-777-7351
Email: michelle.hite@childrenscolorado.org

Cystic Fibrosis Liver Disease:

Michael Narkewicz MD
Clinical Site Principal Investigator
Children's Hospital Colorado
The Pediatric Liver Center
13123 East 16th Ave, B198
Aurora, CO 80045
Phone: 720-777-6669
Fax: 720-777-7277
Email: michael.narkewicz@childrenscolorado.org

Kendra Kocher
Clinical Research Coordinator
Children's Hospital Colorado
13123 East 16th Ave, B198
Aurora, Colorado 80045
Phone: 720-777-5304
Fax: 720-777-7351
Email: kendra.kocher@childrenscolorado.org

Darci Anderson
Clinical Research Coordinator
13123 East 16th Ave, B198
Aurora, CO 80045
Phone: 720-777-9911
Fax 720-777-7351
Email: darci.anderson@childrenscolorado.org

Riley Hospital for Children/Indiana University

ChiLDReN:

Jean P. Molleston, MD
Clinical Site Principal Investigator
Riley Hospital for Children at IU Health
Indiana University School of Medicine
705 Riley Hospital Dr, ROC 4210
Indianapolis, IN 46202
Phone: 317-944-3774
Fax: 317-944-8521
Email: jpmolles@iu.edu

Ann Klipsch, RN, CCRC
Clinical Research Coordinator
Riley Hospital for Children at IU Health
Indiana University School of Medicine
705 Riley Hospital Dr, ROC 4210
Indianapolis, IN 46202
Phone: 317-944-9605
Fax: 317-944-3771
Email: aeye@iu.edu

Cindy Sawyers, RT
Study Coordinator
Riley Hospital for Children at IU Health
Indiana University School of Medicine
705 Riley Hospital Dr, ROC 4210
Indianapolis, IN 46202
Phone: 317-944-1421
Fax: 317-944-3771
Email: clsawyer@iu.edu

Cystic Fibrosis Liver Disease:

Jean Molleston MD
Clinical Site Principal Investigator
Riley Hospital for Children at IU Health
Indiana University School of Medicine
705 Riley Hospital Dr, ROC 4210
Indianapolis, IN 46202
Phone: 317-944-3774
Fax: 317-944-8521
Email: jpmolles@iu.edu

Ann Klipsch RN, CCRC
Clinical Research Coordinator
Riley Hospital for Children at IU Health
Indiana University School of Medicine
705 Riley Hospital Dr, ROC 4210
Indianapolis, IN 46202
Phone: 317-944-9605
Fax: 317-944-3771
Email: aeye@iu.edu

Cindy Sawyers, RT
Study Coordinator
Riley Hospital for Children at IU Health
Indiana University School of Medicine
705 Riley Hospital Dr, ROC 4210
Indianapolis, IN 46202
Phone: 317-944-1421
Fax: 317-944-3771
Email: clsawyer@iu.edu

Children's Hospital Los Angeles

ChiLDReN:

Kasper Wang MD
Clinical Site Principal Investigator
Children’s Hospital Los Angeles
Department of Pediatric Surgery
4650 Sunset Blvd, MS #100
Los Angeles, CA 90027
Phone: 323-361-2338
Fax: 323-361-3534
Email: kwang@chla.usc.edu

Catherine Goodhue, CPNP
Clinical Research Coordinator
Children's Hospital Los Angeles
Department of Pediatric Surgery
4650 Sunset Blvd, MS #100
Los Angeles, CA 90027
Phone: 323-361-4566
Fax: 323-361-3534
Email: cgoodhue@chla.usc.edu

Janelle Gonzalez
Clinical Research Coordinator
Children's Hospital Los Angeles
Department of Pediatric Surgery
4650 Sunset Blvd, Mailstop #100
Los Angeles, CA 90027
Phone: 323-361-3113
Fax: 323-361-3534
Email: jangonzalez@chla.usc.edu

Cystic Fibrosis Liver Disease:

CFLD not studied at this site

The Children's Hospital of Philadelphia

ChiLDReN:

Kathleen Loomes, MD
Clinical Site Principal Investigator
The Children's Hospital of Philadelphia
Division of Gastroenterology, Hepatology & Nutrition
3401 Civic Center Blvd
Philadelphia, PA 19104
Phone: 215-426-7223
Fax: 215-590-3606
Email: loomes@email.chop.edu

Jessi Erlichman MPH
Clinical Research Coordinator
The Children's Hospital of Philadelphia
Division of Gastroenterology, Hepatology & Nutrition
3401 Civic Center Blvd
7th Northwest, Main Bldg; Rm 18
Philadelphia, PA 19104
Phone: 215-590-2525
Fax: 215-590-3680
Email: erlichman@email.chop.edu

Ashley Byrne
Clinical Research Coordinator
The Children's Hospital of Philadelphia
Division of Gastroenterology, Hepatology & Nutrition
3401 Civic Center Blvd, 7NW45
Philadelphia, PA 19104
Phone: 267-426-8613
Fax: 215-590-3680
Email: byrneae@email.chop.edu

Cystic Fibrosis Liver Disease:

CFLD not studied at this site

Children's Hospital of Pittsburgh of UPMC

ChiLDReN:

Robert H. Squires, MD
Clinical Site Principal Investigator
Children's Hospital of Pittsburgh
Division of Pediatric Gastroenterology, Hepatology and Nutrition
4401 Penn Ave., Faculty Pavilion, Fl 6
Pittsburgh, PA 15224
Phone: 412-692-5180
Fax: 412-692-7355
Email: robert.squires@chp.edu

Kathy Bukauskas, RN, CCRC
Clinical Research Coordinator
Children's Hospital of Pittsburgh
Division of Pediatrics, Department of Gastroenterology
4401 Penn Ave.
Faculty Pavilion, Floor 6
Pittsburgh, PA 15224
Phone: 412-692-7703
Fax: 412-692-7355
Email: kathryn.bukauskas@chp.edu

Paula Layton, RN
Clinical Research Coordinator
Children's Hospital of Pittsburgh of UPMC
Department of Pediatric Gastroenterology, Hepatology and Nutrition
4401 Penn Ave.
Faculty Pavilion, Floor 6
Pittsburgh, PA 15224
Phone: 412-692-5811
Fax: 412-692-7355
Email: paula.layton2@upmc.edu

Cystic Fibrosis Liver Disease:

CFLD not studied at this site

Seattle Children's Hospital

ChiLDReN:

Karen F. Murray, MD
Clinical Site Principal Investigator
Seattle Children's Hospital
Division of Gastroenterology & Hepatology
4800 Sand Point Way NE
Seattle, WA 98105
Phone: 206-987-2521
Fax: 206-987-2721
Email: karen.murray@seattlechildrens.org

Melissa Young
Study Coordinator
Seattle Children's Hospital
Division of Gastroenterology & Hepatology
4800 Sand Point Way NE
Seattle, WA 98105
Phone: 206-987-1037
Fax: 206-987-2721
Email: melissa.young@seattlechildrens.org

Cystic Fibrosis Liver Disease:

Karen F. Murray MD
Clinical Site Principal Investigator
Seattle Children's Hospital
Division of Gastroenterology & Hepatology
4800 Sand Point Way NE
Seattle, WA 98105
Phone: 206-987-2521
Fax: 206-987-2721
Email: karen.murray@seattlechildrens.org

Melissa Young
Study Coordinator
Seattle Children's Hospital
Division of Gastroenterology & Hepatology
4800 Sand Point Way NE
Seattle, WA 98105
Phone: 206-987-1037
Fax: 206-987-2721
Email: melissa.young@seattlechildrens.org

Alan Genatossio
Study Coordinator
Seattle Children's Hospital
Division of Pulmonary
4800 Sand Point Way NE
Seattle, WA 98125
Phone: 206-987-3317
Fax: 206-987-2639
Email: alan.genatossio@seattlechildrens.org

Saint Louis University / Cardinal Glennon Children's Medical Center

ChiLDReN:

Jeffrey Teckman, MD
Clinical Site Principal Investigator
Saint Louis University School of Medicine
Cardinal Glennon Children's Medical Center
1465 South Grand Blvd #G55
St Louis, MO 63104
Phone: 314-577-5647
Fax: 314-268-2775
Email: teckmanj@slu.edu

Jacki Cerkoski RN, BSN
Research Nurse Coordinator
Saint Louis University School of Medicine
Cardinal Glennon Children's Medical Center
1465 S. Grand Blvd. Rm 5217
St. Louis, MO 63104
Phone: 314-577-5611
Fax: 268-2773
Email: cerkoski@slu.edu

Rosemary Nagy, RDN, LD, MBA
Study Coordinator
Saint Louis University School of Medicine
Cardinal Glennon Children's Medical Center
1465 S. Grand Blvd. Rm 5217
Phone: 314-577-5608
Fax: 314-268-2773
Email: rnagy@slu.edu

Cystic Fibrosis Liver Disease:

CFLD not studied at this site

The Hospital for Sick Children

ChiLDReN:

Binita M. Kamath, MBBChir, MRCP, MTR
Clinical Site Principal Investigator
The Hospital for Sick Children
555 University Ave
Toronto, Ontario, Canada M5G 1X8
Phone: 416-813-7654 ext 228193
Fax: 416-813-4972
Email: binita.kamath@sickkids.ca

Shannon Vandriel
Clinical Research Project Assistant
The Hospital for Sick Children
Gastroenterology, Hepatology and Nutrition
555 University Avenue, Room 8258
Toronto, ON, M5G 1X8
Phone: 416-813-7654 ext. 201594
Fax: 416-813-4972
Email: shannon.vandriel@sickkids.ca

Vanessa Simoes
Clinical Research Project Assistant
The Hospital for Sick Children
Gastroenterology, Hepatology and Nutrition
555 University Avenue, Room 8258
Toronto, ON, M5G 1X8
Phone: 416-813-7654 ext. 201594
Fax: 416-813-4972
Email: vanessa.simoes@sickkids.ca

Cystic Fibrosis Liver Disease:

Simon Ling MBChB
Clinical Site Principal Investigator
Hospital for Sick Children
Division of Gastroenterology, Hepatology & Nutrition
555 University Avenue
Black Wing, Rm 8402
Toronto, Ontario, Canada M5G 1X8
Phone: 416-813-6176
Fax: 416-813-6531
Email: simon.ling@sickkids.ca

Julianne Ling
Clinical Research Coordinator
Hospital for Sick Children
Division of Gastroenterology, Hepatology & Nutrition
555 University Ave
Black Wing, Rm 8271A
Toronto, Ontario, Canada M5G 1X8
Phone: 416-813-5673
Fax: 416-813-6531
Email: julianne.ling@sickkids.ca

University of Utah / Primary Children's Hospital

ChiLDReN:

Stephen L. Guthery, MD
Clinical Site Principal Investigator
University of Utah / Primary Children's Hospital
Division of Pediatric Gastroenterology, Hepatology and Nutrition
81 Mario Capecchi Drive
Salt Lake City Utah 84112
Phone: 801-213-3599
Fax: 801-585-7252
Email: stephen.guthery@hsc.utah.edu

Ann Rutherford
Clinical Research Coordinator
University of Utah, Dept of Pediatrics
50 N Medical Drive, 1C210 SOM
Salt Lake City, UT 84132
Phone: 801-585-9495
Fax: 801-585-7252
Email: ann.rutherford@hsc.utah.edu

Kyle Berg
Study Coordinator
University of Utah, Dept of Pediatrics
50 N Medical Drive, 1C210 SOM
Salt Lake City, UT 84132
Phone: 801-587-5670
Fax: 801-585-7252
Email: Kyle.berg@hsc.utah.edu

Cystic Fibrosis Liver Disease:

CFLD not studied at this site

UCSF Children's Hospital

ChiLDReN:

Philip Rosenthal, MD
Clinical Site Principal Investigator
UCSF Children's Hospital
Pediatrics Gastroenterology, Hepatology and Nutrition
Mail Code 0136
550 16th Street, 5th Floor
San Francisco, CA 94158
Phone: (415) 476-5892
Fax: (415) 476-1343
Email: prosenth@ucsf.edu

Camille Langlois
Clinical Research Coordinator
UCSF Children's Hospital
Pediatrics Gastroenterology, Hepatology and Nutrition
Mail Code 0136
550 16th Street, 5th Floor
San Francisco, CA 94158
Phone: (415) 476-1756
Fax: (415) 476-1343
Email: camille.langlois@ucsf.edu

Natasha Feier
Clinical Research Coordinator
UCSF Children's Hospital
Pediatrics Gastroenterology, Hepatology and Nutrition
Mail Code 0136
550 16th Street, 5th Floor
San Francisco, CA 94158
Phone: (415) 476-1539
Fax: (415) 476-1343
Email: natasha.feier@ucsf.edu

Cystic Fibrosis Liver Disease:

CFLD not studied at this site

University of Minnesota Masonic Children's Hospital

ChiLDReN:

CFLD only at this site

Cystic Fibrosis Liver Disease:

Sarah Jane Schwarzenberg, MD
Clinical Site Principal Investigator
University of Minnesota Masonic Children's Hospital
2450 Riverside Avenue
East Building, 6th flooor
Minneapolis, MN 55455
Phone: 612-624-1133
Fax: 612-626-0639
Email: schwa005@umn.edu

Denise Stacklie
Research Coordinator
University of Minnesota Masonic Children's Hospital
401 East River Parkway, VCRC Room 418
Minneapolis, MN 55455
Phone: 612-626-9491
Fax: 612-626-9474
Email: stack046@umn.edu

Johns Hopkins School of Medicine

ChiLDReN:

CFLD only at this site

Cystic Fibrosis Liver Disease:

Wikrom Karnsakul MD
Clinical Site Principal Investigator
Johns Hopkins School of Medicine
Division of Pediatric Gastroenterology and Nutrition
East Baltimore Campus
1800 Orleans St, CMSC 2-116
Baltimore, MD 21287
Phone: 410-955-8769
Fax: 410-955-1464
Email: wkarnsa1@jhmi.edu

Kim Kafka RN, BSN
Clinical Research Coordinator
Johns Hopkins School of Medicine
Division of Pediatric Gastroenterology and Nutrition
East Baltimore Campus
600 North Wolfe St, CMSC 2-116
Baltimore, MD 21287
Phone: 410-614-8583
Fax: 410-614-1820
Email: kfehily2@jhmi.edu

Texas Children's Hospital

ChiLDReN:

Benjamin Shneider, MD
Clinical Site Principal Investigator
Texas Children’s Hospital
6701 Fannin, CCC 1010.00
Houston, TX 77030
Phone: 832 822 3608
Fax: 832 825 3633
Email: Benjamin.Shneider@bcm.edu

Laurel Cavallo
Clinical Research Coordinator
Texas Children’s Hospital
1102 Bates Avenue, Suite C.0860.21
Houston, TX 77030
Phone: 832-822-1053
Fax: 832-825-4893
Email: Laurel.Cavallo@bcm.edu

Cynthia Tsai
Clinical Research Coordinator
Texas Children’s Hospital
1102 Bates Avenue, Suite C.0860.21
Houston, TX 77030
Phone: 832 822 3634
Email: ct2@bcm.edu

Cystic Fibrosis Liver Disease:

Daniel Leung, MD
Clinical Site Principal Investigator
Texas Children's Hospital
6701 Fannin St, CCC 1010.000
Houston, TX 77030
Phone: 832-822-3606
Fax: 832-825-3633
Email: dhleung@texaschildren.org

Erica Turner
Clinical Research Coordinator
Texas Children’s Hospital
1102 Bates Avenue, Suite C.0860.21
Houston, TX, 77030
Phone: 832-824-3848
Fax: 832-825-4893
Email: erica.turner@bcm.edu

Chad Baumgardner
Clinical Research Coordinator
Texas Children’s Hospital
1102 Bates Avenue, Suite C.0860.21,
Houston, TX, 77030
Phone: 832-824-3848
Fax: 832-825-4893
Email: chad.baumgardner@bcm.edu

Washington University School of Medicine

ChiLDReN:

CFLD only at this site

Cystic Fibrosis Liver Disease:

Janis Stoll
Clinical Site Principal Investigator
Washington University School of Medicine
Pediatric Gastroenterology
One Children’s Place, Box 8116
St Louis, MO 63110
Phone: 314-454-6173
Fax: 314-454-2412
Email: Janis.Stoll@wustl.edu

Kathleen Harris
Clinical Research Coordinator
Washington University School of Medicine
Division of Gastroenterology & Nutrition
One Children’s Place, Box 8116
St Louis, MO 63110
Phone: 314-747-5708
Fax: 314-286-1261
Email: harris_k@kids.wustl.edu

Stacy Postma
Clinical Research Coordinator
Washington University School of Medicine
Division of Gastroenterology & Nutrition
One Children’s Place, Box 8116
St Louis, MO 63110
Phone: 314-747-5931
Fax: 314-454-2412
Email: postma_s@kids.wustl.edu

Data Coordinating Center

John Magee, MD
Data Coordinating Center Co-Principal Investigator
University of Michigan Medical School
Department of Surgery
Taubman Center, Rm 2926G
Ann Arbor, MI 48109-0331
Phone: 734-936-9623
Fax: 734-763-3187
Email: mageej@umich.edu

Robert Merion, MD, FACS
Data Coordinating Center Co-Principal Investigator
340 E. Huron St, Suite 300
Ann Arbor, MI 48104
Phone: 734-665-4108
Fax: 734-665-2103
Email: bob.merion@arborresearch.org

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