This section provides information about ChiLDReN studies. A brief description of each study is provided, with a link to the website that offers detailed information that may help you consider study participation.

Most of the ChiLDReN studies are natural history studies aimed at acquiring information and data that will provide a better understanding of these rare conditions. Participants will be asked to allow study personnel to obtain information from medical records and an interview, and to collect blood, urine, and tissue samples when clinically indicated, in order to understand the causes of these diseases and to improve the diagnosis and treatment of children with these diseases. All of the information obtained in these studies is confidential and no names or identifying information are used in the study.

The ChiLDReN Network has several active studies focused on children that are diagnosed with cholestasis as shown in the list: